Struggling for the dignity of women with Relapsing-Remitting Multiple Sclerosis: An interpretative phenomenological single case study analysis

41 | 2020

Michaela Miertová*, Juraj Čáp**, Katarína Žiaková***

* Jessenius Faculty of Medicine, Comenius University in Bratislava, Slovak Republic
ORCID: https://orcid.org/0000-0002-4063-1371
** Jessenius Faculty of Medicine, Comenius University in Bratislava, Slovak Republic
ORCID: https://orcid.org/0000-0002-5754-5859
*** Jessenius Faculty of Medicine, Comenius University in Bratislava, Slovak Republic
ORCID: https://orcid.org/0000-0002-1408-3447

This paper reports the findings of a study based on interpretative phenomenological analysis that aimed to explore the meaning of dignity for woman (Olivia) with relapsing-remitting multiple sclerosis. Olivia’s dignity was related to five core themes: Fulfilling life; Unfair judging; To be dependent on others; Healthcare professionals – disregard and ignoring; Healthcare professionals – respect and support. Her sense of dignity interfered with physical dependence, help from others, loss of control and independency. Her dignity was violated by disregard and indifference in interactions. To understand individual experience is important for a comprehensive person-centred care.

Keywords

dignity, woman with multiple sclerosis, single case study, interpretative phenomenological analysis

DOI: https://doi.org/10.22355/exaequo.2020.41.05
[ Download pdf ] [ View pdf ]